Monday, February 1, 2010

Update on Jesus

Hi, this is Brandi (Nathan's mom) and I'm updating on Jesus for Angelica.

On January 8th, Jesus had surgery to fix a couple of hernias, a chordee, and an orchiopexi was successfully performed. He did well through the surgery but had a hard time coming out of the anesthesia and breathing on his own. He ended up being admitted for a couple of days.

Jesus has spent the majority of the last week in the hospital undergoing several tests and to follow up on his apnea.

One of the first tests last week was an attempt to place a ph probe down his nose into his esophagus to determine the rate and severity of Jesus' reflux. Unfortunately the nurses were unable to get the probe through his sinuses and caused him to bleed and turn purple. Needless to say, it was a lot of discomfort, but no results.

The next day he had a CAT scan that revealed some scarring in his lungs as well as the beginning stages of lung disease.

Following that test, he had an edoscopy to find out what was blocking his airway and causing his apnea. His tonsils were normal size but his adenoids were blocking 50% of his airway. An emergency adenectomy was done that day.

Today, Jesus had a swallow study that revealed he is aspirating. The doctors have recommended that a g-tube be placed in order to protect his lungs. Tomorrow they will attempt another ph probe to determine if his reflux is bad enough to have a Nissen wrap placed at the same time as the g-tube.

On Wednesday he will undergo an upper GI to rule out malrotation of the intestines.

There has been no surgery date set due to the remainder of tests that need to be done.

He is also scheduled for an MRI on Feb. 8th to check for a tethered cord.

This little guy and his family have been through so much in the past month. They are holding up amazingly well and are thankful to everyone who has helped out. In fact, Jesus got to come home and sleep in his newly furnished and decorated room. Angelica said that he loves it and so do they. This beautiful family could really use your continuous thoughts, prayers, and well wishes as there is much more ahead of them.


Tena said...

Thanks for the update Brandi. We're praying for your family Angelica!!

Kristi said...

Wow so much. I am thinking of your family and praying..

Cindy said...

Angelica, you and Jesus have a lot going on right now, and I'm so glad that you are the parents of little Jesus! We are praying for your peace during this very difficult time, and for wisdom for the doctors.

Christine said...

Thanks Brandi for updating us on Jesus.
Your family really has been through a lot. Please know that we are thiking of you and praying for you.

Anonymous said...

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I've been around for quite a lot of time, but finally decided to show my appreciation of your work!

Thumbs up, and keep it going!