About Jesus

Jesus was born April 2' 2009. My pregnancy went great. The first thing we noticed about him was that he was not crying he was only grunting. That was a horrible thing to hear when your expecting to hear your baby cry for the first time and then to see him all purple was even worse. We didn't know that this was only the beginning of it all. With a couple more test and a good look at him they noticed that his thumbs and first toes were broad, He has 6 toes in each foot, He is completly blind in the Left eye, he has a heart defect (Bicuspid Aortic Valve), and undescended testicles, along with a chordee. After spending 12 days in the NICU he was discharged with a list of Specialist we had to see. Little did we know this list would later grow. It wasn't until we saw a Geneticist around when he was 2 months old that we heard the words Rubinstein-Taybi Syndrome.
He has been hospitalized twice, and see's over 11 specialist. But through all of this he is strong he wakes up everyday with a big smile on his face, and reminds us that life is a blessing and i would not change anything about our life!