The Medrano Family

So HAPPY!

2011-11-17T17:50:00.000-08:00

We have had a very hard month! But today I'm just going to focus on how happy i am!
my sweet boy doesn't only eat wipes :)

He also eats

its not pureed he bits swallows and eats it and LOVES the cheesy taste!

My girl is 5!

2011-11-17T17:46:00.000-08:00

Happy Birthday My Girl!

You are the best daughter that any mother could ask for! and the best big sister in the world!

Halloween in pictures

2011-10-31T21:43:00.000-07:00

Esmeralda was tinkerbell :)

Jesus was a gnome :)

Xavier was a Monkey :)

Esmeralda gave out candy and loved it!

2 out of three ready for bed :)

Jesus got a hair cut He looks like such a big boy

Xavier is such a happy baby

now she is ready for bed
Happy Halloween everyone!!!!

will we make it...

2011-10-08T18:51:00.000-07:00

Yes we will!!!
however Recently i have been felling a bit overwhelmed and out of breath and just like i'm not sure how i'm going to be able to put my baby boy through so many surgerys in less than a year maybe less than half a year.
We had two long days in the hospital this past week that showed Jesus will be needing his tonsiles removed they are huge and hopefully removing them will help with his sleep apnea. He also has Glaucoma luckly its on his already blind eye however we will have to be keeping that much more of a close eye on his right eye because its his only eye so i pray to God to please keep that eye safe. His hearing in his left ear is great and in his right ear its good enough not to need anything done to it! yay!! He will be needing his right testical brought back down because as he grows it is traveling up and they dont want to loose it. he will need to have tethered cord surgery (which i hear is an easy recovery :) ) This surgery needs to be done before more damage is done to his bladder and kidneys. with this said this brings us to the fact that the low lying cord has already caused damage to the nerves that control his bladder so he is not emptying his bladder compleatly because of this the doctor says she will re-evaluate him after 3 months of the tethered cord surgery to see how its all functioning and if he is still not emptying properly then she wants to do a catheter that is surgyicly placed and comes out of his belly button so that we can empty his bladder all the way properly. ( i hope and pray that this procedure can be avoided however anything to keep my little guy from damaging his kidneys....
so yes i have cried and i have prayed and i'm just going to put it all in Gods hands and focuse on the now and as one great mama told me take it one surgery at a time!
Thank you all in advance for your prayers!

Jesus Talking With his Dynavox

2011-10-04T21:37:00.000-07:00

FOR DADDY

2011-09-11T19:46:00.000-07:00

Papi come home so you can tuck us in bed and sing us a lullaby and read us a book :)

just when i thought

2011-09-06T12:42:00.000-07:00

For almost a year now Jesus has been very healthy and has not been needing to go under anesthesia for anything and it was just all going so good that i thought wow i can relax and just enjoy my wonderful boy. well no not no more i hate to sound like I'm whining but i just need to vent i guess...

it all started when Jesus had an MRI to check for spinal tethered cord which the doctor said he had the results show more of a low lying so we are being referred to a neurosurgeon to see what he wants to do about this more than likely surgery, and then he didn't really pass his hearing test but its not failed where he would benefit from a hearing aid, so they want to check that under anesthesia and now at his Ophthalmology app. it turns out his eye pressure was high his left eye is 35 and his right is 30 the doctor saying she needs to have him go under anesthesia so she could check this I'm just tiered of it all i want him to be healthy i so just want to get some good news :(

just needed to vent thank you for listening

firts run

2011-09-03T15:42:00.001-07:00

With the inspiration of some moms with RTS sweeties i decided to start running in reality i decided last month but i kept making up reasons for why i couldn't start one of the big reasons being that i had 3 kids with no one to take care of them. But today i let go of all my reasons and just went for it. i got this program c25k and i can say i see why so many people have used it with great success, i can say that there was a point in my run when i felt i was going to die(the first 2 running turns) i ran at the pace of my 4yr old and even she seemed to be having a way easier time running we had to stop 2x for flowers but i think that we did great. at the end of our run we stopped at the park then came home to play with water it was a good time i hope to be doing 3x a week although i have decided that in order to make it a better workout for me i will be doing 2 of my runs during the time Esmeralda is at school and only one with her!

i would like to thank my sister and her hubby for this awsome jogging stroller :)
xavier is still a bit small so i put a towel to help support his head.

Esmeralda dosnt even look like she got tierd

i was huffing and puffing the whole time

play time

2011-08-21T13:51:00.000-07:00

Jesus and Esmeralda have learned how to play very well together they still fight sometimes but i can now trust them to play alone without to much fighting going on.

Esmeralda does the playing because Jesus still wont touch the screen

And Jesus will say when they are done with that game and its time for another game.

This is a new toy and before Jesus felt confident enough to play with it alone Esmeralda joined him in showing him how its done. Esmeralda puts in the cars and Jesus makes them go by pushing on the lever

i put Jesus inside Xavier's crib because he likes to play in there and Esmeralda decided to join him and you all are lucky this is not a video because they were yelling really loud.

Xavier was wondering why they were in his crib yelling ;)

also some outside play

Its so nice to see them getting along so well i cant wait to have all three kids playing together :)

going forward :)

2011-08-19T09:58:00.000-07:00

jesus going down the slide

2011-08-19T09:51:00.000-07:00

i know i'm no good at making videos :)

Road Trip

2011-08-01T20:47:00.000-07:00

I decided to take the kids to visit family back home before Esmeralda starts school. we have no family around us and since my hubby is deployed it gets kinda lonely sometimes we hopped in the car and i drove us the 9-10hr drive :)

Our trip started of with therapy Jesus had hippo therapy and he does so good and gets so organized that we could not miss it.

he even did some walking

he was so proud of himself

i have no pictures of our actual trip because it was more important to drive than be taking pictures however i can say that the trip down we made it on schedule with about 4 stops to put gas and eat.

Esmeralda lost her first tooth at the age of 4.8yrs, her tooth was so loose it fell while eating a sandwich and she ended up swallowing the tooth. she has one more tooth that is also loose.

Jesus Enjoyed some swinging
at the park

and also in Xaviers swing he just needed the extra stimulation with being somewhere new.
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We had Erics Birthday party he is now 7yrs old :)

we went to the pool but my camera died :( and i forgot to take my charger with me...
The kids loved the pool Xavier stayed out of the pool he is still to little but Jesus stayed in the whole time as well as the rest of the kids it was a fun outing :)

My sister took the 3 older kids to the zoo and got there face painted Esmeralda loves to get butterflies

We then returned home and on the way home we just did one stop yes all kids behaved enough for us to do it all with one stop. we got home and unpacked and went to sleep. we had a fantastic time but now its time to go back to reality.
Then this morning i got a great picture of Esmeralda and Xavier (i have been trying to get him to smile but for a picture but every time i pull out a camera he stops smiling today at 2months and 4days old i was able to capture a smile :)

go read

2011-07-21T18:00:00.000-07:00

If you have some time in your hands and want to read some great writings you should head on over to my hubby's new blog.

www.dranoblogger.blogspot.com

Meal time

2011-07-18T20:11:00.000-07:00

We try to have meal time together every meal even now that daddy isn't home we try to keep this time as family time so here is what its like i make the food and Esmeralda helps me set the table, Jesus enjoys eating yogurt so his meal is yogurt or pudding. i sit him down in the high chair and feed him, he is still not feeding himself actually if i put the bowl or spoon to close to him he will fling them and make a huge mess. then in the middle of eating or sometimes in the beginning Xavier realizes that he isn't part of our meal time so he starts crying so if you can imagine me with my 3 kids trying to listen to all the things Esmeralda has to say, trying to Feed Jesus and have him not make a big mess while i nurse Xavier and try to eat all at the same time. yes its hard and yes i sometimes feel overwhelmed and yes sometimes i feel like crying.
I miss having my hubby around and having an adult to talk to and basically there are times when i don't feel as strong as people say i am...

2hr drive

2011-07-16T20:47:00.000-07:00

I know what your thinking a 2 hr drive one way with 3 kids under the age of 5 must not be a good idea however it was not as bad as i thought it would be actually it wasn't bad at all and the reason for the 2hr drive was so much fun that we will be doing it again (when we all have the time in our busy schedule)
we went up to visit with Kathleen Lee and her very precious son Joshua (Jesus's RTS brother)
first we went to eat i didn't get any pictures during this time i was to busy changing diapers from the long trip and eating and talking that pictures were forgotten then we went to bounce, here i did take pictures here are a few...

Jesus exploring

Joshua showing me how his toy works

and getting super excited about it :)

i couldnt get the boys to stay still enough to take a picture of them together

Esmeralda sliding

and even Kathy joined in on the jumping

we had a great time! cant wait for the next time :)

ZOO

2011-07-16T20:12:00.000-07:00

I decided to venture out on my own with the 3 kids, we have done things like shopping or doctor app., picking up meds at pharmacy's, but nothing big like the zoo.
Our local zoo is located in a mountain and as you look at the animals you are going further up and its not like you don't notice your going up there are huge hills and pushing a heavy stroller with 2 kids in it is not easy but we had fun. even though for some of us the fun had nothing to do with the animals in the zoo.

Esmeralda's favorite part was feeding the Giraffes

Jesus's favorite part was playing with a fan i bought him, i took him out of the stroller to try and feed giraffes, we passed the zebras, the carousal, the monkeys but nothing was as much fun as his fan.

Xavier's favorite part was sleeping

My favorite parts (i have 3) were seeing how happy Esmeralda was

seeing the huge smile Jesus gave me when i took him out of the stroller

and having Xavier sleep the whole time we were at the zoo making me not have to pick him up when it was so hot and sweaty

to give you all an example of the hills we climbed

we had fun we just missed having daddy around...

4th of july

2011-07-16T19:36:00.000-07:00

here on base they had the 4th of July celebration on July 3rd we were lucky enough to have my sister in town, here are some pics of what we got to do.

the three older kids got face paintings

while Xavier slept

and Jesus got pushed in the swing by his God Father

where did Jesus go?

there he is

we were supposed to do more like jumping houses and a trampoline thing along with trying out some Delicious food however it rained so bad we got soaked we were able to cover Jesus and Xavier and not even one drop of rain got on them while we ran to the car how ever the rest of us were not so lucky

what we have been up to

2011-07-01T10:59:00.001-07:00

It has been a hard first 2 weeks without my hubby so in order to have the kids distracted and keep myself busy we have been doing some outings. My sister came into town to visit the 2nd week after he had left and that has been a lot of help, and fun :)

Me and Esmeralda have been doing sleepovers once a week or so she gets to sleep in my room with me and watch a movie and eat popcorn she loves this because its one less week for my hubby to be gone. We watched Toy story 3 here she is watching toy story 3 with her new doll Jessie,

Jesus has gotten obsessed with balls he loves balls and he loves to throw them and see them bounce on the floor then he will chase it and do it all over again.

I attempted to take a pic of the 3 kids and i think this one came out pretty good

then Jesus got board and started pulling Esmeralda's hair

We found a really cool water park its free and fun and the kids luv it

Esmeralda all wet i think she ended up falling like twice while we were there she is so clumsy :(

Jesus loved to see the kids play but when i would go try and put him in he screamed and held on to me he hated the cold water but enjoyed watching the kids play. :)

A couple of days later Jesus got sick he got a double ear infection and throat infection and he was having really high fevers, i took him to the ER and they gave him an antibiotic that a couple of days later gave him an allergic reaction. but anyways he is doing better now thankfully! however he did not get to enjoy the the next two outing we did he stayed home with his nurse to recover.

we went to a dinosaur museum and the kids had a great time :)

then we went to itz and Esmeralda and Eric (my God son) got to ride the bumpper cars, Viviana(my niece) wasnt tall enough.

Here is a pic of Esmralda playing a race car game she reminds me so much of her daddy here because he loves race care games

Deployment

2011-06-18T19:09:00.000-07:00

This is my hubby's 3rd Deployment but they don't get any easier if anything it gets harder! the first one i had no kids the second one we had Esmeralda she was 1 so she doesn't really remember and this one we have 3 kids and it has been so hard to see Esmeralda cry herself to sleep, and to see Jesus look for papi and say papa and the only thing i can offer him is a recorded lullaby and a pic. which is not enough. and on top of having them try to adjust to a new baby brother they are struggling without daddy. :( the day after he left was our 7th year anniversary! i think we have spent 2 out of the 7 together, the way i see it is every day can be celebrated as an anniversary :)

The monkey in the pictures is the monkey we sent with him so that he could take everywhere with him and the kids could see the monkey in pictures and see how papi is thinking of us :)

Because my hubby will be missing out on a year of seeing his kids grow i will try very hard to keep my blog better updated for him to be able to log on and see them grow and see what we are doing. I cant make any promises because believe me i have my hands full with the 3 kids, and the lack of sleep is not helping. But i will try :)

WE love you papa, come home safe, you are our hero!!!

Meet Xavier

2011-06-18T18:50:00.000-07:00

Xavier Eduardo Medrano
was born on may 28th 2011, at 5:47pm
i was 39weeks pregnant this has been my longest pregnancy as a matter of fact I'm sure it would have been longer had the doctors not thought it best to induce me. It was a long morning at the hospital and we had a small moment were we got scared because Xavier's heart rate went down but after they put me on oxygen everything went back to normal, :) after they finally started the induction it all went pretty fast well a little to fast to be exact. As i was getting ready to push like the nurse instructed me to do, she then went on to tell me to not push and she started yelling for the doctor and from one second to the next he just came out the nurse ended up delivering him another nurse came to help (she didn't even have gloves) it all happened so fast. Here are some of his first pics :)

35 weeks pregnant

2011-04-29T23:23:00.001-07:00

I am now officially 35 weeks pregnant and as some of you may know i never make it to my 40 weeks pregnant. My water breaks before i can get to 40 weeks, with both times breaking at 2 in the morning. With Esmeralda my water broke at 35 weeks 5days so they called it 36 weeks,she was 6lbs 12 oz with Jesus it broke at 38 weeks 2days, he was 6lbs 15.4oz. this time for sure i wont make it past 39 weeks my doctor has told me he wont let me go further than that due to Gestational diabetes so the longest ill be pregnant is 39 weeks but i'm wondering if my water will break before that... I would love to hear your votes on when you think i'll go into labor leave a comment =)

clapping, chewing, eating, talking

2011-04-23T15:01:00.000-07:00

Terrific twos!!

2011-04-23T10:21:00.000-07:00

we have not been experiencing the normal terrible twos around here we actually call it terrific twos!! Jesus Has been doing so much in this month that it seems like he was waiting to turn two to show us all that he can do! we are so proud of him and so thrilled!!! here are some of the things he is up to :) He started hippo therapy a week after he turned two he doesn't really enjoy the helmet but as soon as he sits on the horse he forgets all about it and enjoys the ride. Hippo therapy has been the best thing ever it helps him so much more than i thought it would! we love it!!! we are able to let him sit on a chair or on his own without worrying to much of him getting hurt. it used to be that as soon as we would sit him he would throw himself backwards and end up hurting himself if someone was not there to catch him now however he is more aware of his body and where he is in space that he will try to go forward to get out of sitting, and this has helped him know he can get himself into sitting he hasn't done it often but we know he can do it :)

i don't have a picture of this next one but he is now clapping!! yay! He will not do it unless he wants to however if he is in the mood he can now play patty cake with us :) He is also choosing to watch tv in other positions other than laying down on his back on the floor. Another amazing accomplishment is that he is crawling on hands and knees :) and pulling to stand when he feels confidant :) but he can do it all on his own! He still has times when he feels more confty army crawling or scooting on his back but just the fact that he is crawling at times is amazing he will come and pull to stand on the couch for me to pick him up its just so amazing how much he is doing! here he is on his knees getting ready to pull up :) now he is standing Jesus has sensory processing disorder and with his low vision it used to make it harder for him to want to touch things with his hands i think that is why he wouldn't crawl with hands and knees because he would always have his hands into fist. it used to be that he would not want to touch anything or move fast, or do anything that was out of his comfort zone however recently that has changed and now he is what his OT describes as sensory seeking child. he loves tight hugs and deep pressure we do joint compressions and brush therapy and swinging really high to feel wind in his face, playing with anything that is put in front of him. hope you enjoyed his accomplishments as much as we do :)

HAPPY BIRTHDAY JESUS!!!

2011-04-02T07:57:00.000-07:00

My little boy turns 2 today! Happy birthday Jesus I love u so much! U r so strong and happy and u have showed me how even when life gets hard u keep smiling and being strong! U have gone through more surgeries than the number of years u have in this life and yet u kept a happy face!! Happy birthday my boy u make my life better!!!

We have been celebrating his birthday 2x so far and we will celebrate it again today and on tue. My sister came from out of town 2 weeks ago and we wanted them to be around for his celebration then my mom came into town 1 week ago so we celebrated him again. :) today is his day so we will be doing things he loves. here are some pictures of his celebrations so far! :)

he eat ice-cream cake and very little frosting of his second cake. he also opened presents and he loved it when we would all sing to him! he needed some help with blowing the candle. but he enjoyed all the attention going to him. :)

growing up

2011-02-25T19:08:00.000-08:00

Jesus has been doing a lot of growing up. He loves to travel through the house he will not stay still which is great (kinda). He is now doing a low crawl with elbows and knees, we are still working on hands and knees but its hard because he doesn't like touching the floor he will close his hands while he crawls. Another new thing he does is he can pull himself from the position of knees to standing he still doesn't know how to get to his knees but that's ok we are getting there. He is starting to enjoy eating instead of it being a thing he is forced into, granted he only eats cold sweets but he is eating He likes yogurt, ice cream, jello, and ice. he will now get a smile when i ask him if he wants to eat were as before he would complain and cry after a spoon or two. when i try sneaking other types of food into his diet he will look at the spoon and if its something he doesn't recognize he will not open his mouth, he has also smiled and pushed the spoon away like if he is saying "silly mom I'm not eating that"
He really enjoys pinching necks i don't know why but he does this kinda soft pinch on anyone who is holding him sometimes he does it to himself. When its time for bed time he likes to clamp his feed cord to make the machine beep so that i have to come back into his room and he will smile at me with such a big smile its hard to be mad at him, he will do it over and over and over until he is too tired to play this game, or until i turn off the pump and turn it back on once he is asleep.
Another one of his favorite past times is to make mommy stand up with him and make the fan spin, and spin, and spin. here he is asking for more spin.

And this is the smile i get after i make it spin :) so how can i not make the fan spin for him.

opening and closing things is a big one around our house i will often find all my kitchen doors open or the doors in closets because i have the habit of not closing doors all the way which allows little hands to come and open and close those doors or open them and crawl away to another door,or drawer.

Esmeralda has also been doing a lot of growing up she has been in preschool since December, and this month we had our first parent teacher conference. Her teacher said everything a parent wants to hear she said Esmeralda is out going, responsible, very talkative, is friends with all the kids and has been known to help out (without being asked to) some of the special need kids. She came home the other day almost in tears, happy tears because she said she was very proud of her friend for walking to her teacher in line like the rest of them. :) And at that moment i just couldn't help but be proud of her!

For valentines we made cupcakes and had lots of fun eating them:)

My baby bump has grown i fell like a big marshmallow i cant imagine how much bigger i will get ;) I went to an ultrasound yesterday and they said that my boy was growing the way he should be he is weighing at 2.2lbs and his heart does not present any abnormalities. Esmeralda got to go with me and she had a good time seeing her brother and saying how she cant wait for him to be born and how now she has 2 brothers. She wanted a girl but when she found out i was having a boy she took it really well the only thing she has mentioned is "if you wish for a girl you get a boy and if you wish for a boy you get a girl" silly girl :)

although this month has been fun and full of lots of activities and laughter and a lot of mommy time with Jesus and Esmeralda. We can all say that we cant wait for Monday when Daddy gets home from a whole month of being gone. :) He is getting ready for deployment in the next 3 months! we hope that those months that he is here don't go as fast as this one did.

no time to blog

2011-01-19T14:47:00.000-08:00

I Have been wanting to blog about lots of things that we have been doing but when it comes to choosing between blogging or sleeping and you are pregnant with 2 kids to tend to most of the time sleep comes first...
Here are some pics of things we have been up to :)

we took a road trip during Christmas vacation
they both did way better than we expected, even if it doesn't look like they are happy!

We have also enjoyed some snow
Baloo joined in on the outside fun with Esmeralda and with daddy they made snow angels and had a very good time outside. while me and Jesus got snowballs thrown at us through a window and looked at all the fun we also got to make hot chocolate for them :)

We had a very fun New Years Day

Esmeralda has had a lot of fun with Basket Ball

Jesus for the most part has been healthy and happy

Last but not least we found the sex of our 3rd child :)

we are going to have a BABY BOY!!

on our way to walking :)

2010-11-15T16:30:00.000-08:00

No Jesus is still not walking he likes to stand but cant do it on his own yet. however his PT thinks its a good idea to get Jesus used to a walker she went out of her way to find one that Jesus would fit in to. She lent it to us and said we can use it for up to a month or more until we decide which one we are going to get for Jesus. Jesus has an amazing PT that really shows she wants to help him reach his full potential, and we are very greatful to have her!

Birthday Girl

2010-11-14T07:14:00.000-08:00

Its hard to belive that my little girl has now turned 4!

ON or OFF

2010-09-17T16:07:00.001-07:00

Jesus is not sure if he wants his glasses on or off, this is how it has been for the first hour we got them.
*i put them on
*he takes them off
*he notices he sees better with them
*he trys to put them back on
*he dosnt know how
*they fall
*he puts them in his mouth
*i clean them and put them back on
*they stay on for 15 min
*he forgets and we start all over agine
The good news is he hasnt complained when i put them on so i hope that this glasses thing goes easier than the oxygen,cpap,and feeding 24/7 thing...
=)

Jesus crawling (our first video)

2010-08-31T14:57:00.000-07:00

Scooting

2010-08-28T18:41:00.001-07:00

Jesus is now doing his army crawl :)

so proud to get to his sisters piano :)

then he decided to go play with his blanky instead =)
]

He still can not go around things so if there is something in his way he will complain however he is moving around yay! =)

Look at how i found him

2010-07-18T20:04:00.000-07:00

Yay, I am so glad! he got into the wipes and made a big mess and instead of being mad at the mess i had to clean up i couldn't help but smile, laugh and i even had a tear or two in my eyes! its so great to enjoy our kids growing up!
He is going through a tough time health wise and yet he is such a happy boy!
I love you Jesus!

Rant

2010-06-30T18:58:00.000-07:00

This is only a rant, just needing to write, needing to let it out! I'm not even sure I'll post it, i just know that i hate not knowing, not having answers! I just feel so lost, i feel like a failure, as if I'm not doing something right or maybe I'm just doing everything wrong!
Jesus is sick again and once again its his lungs, he's having a hard time breathing, he is having fevers, and no one can tell me how to make it all go away. how to help him stop getting sick! he has seen over 6 doctors just for this one thing his breathing/lungs and no one can help all the doctors say is his lungs are just so damaged we need to let them heal! he is on over 5 medications to help his lungs.
all i want to know is how are they going to heal if he keeps getting sick!
Why why why why why!
I'm so scared so scared that one day his lungs just wont be able to handle it no more! I just want my baby to be ok, and i Pray i pray for him to be ok and i hope, i beg and i plead and i do everything i can and yet he is still sick he is still fighting to breath.
I don't know what Else to do!
i just don't!

feeding

2010-06-18T19:59:00.000-07:00

Jesus passed his swallow study he is allowed to eat nectar thick liquids and cereal. yes this is great news but in the almost 3 weeks that we have had this great news today was the first day he seemed to tolerate/enjoy feeding time! it has been a long journey!
In the 2 almost 3 months that Jesus was not allowed anything by mouth he forgot how to eat, drink from a bottle, and basically he forgot that its fun to have food in your mouth.

instead of being happy and enjoying feeding my baby every time after a feeding i would either end up with tears or just feeling horrible when it came to feeding. I felt like i was doing him more harm than good. He would choke, gag, go threw a wreching episode, throw the food or just cry when he saw me with food. And on top of it all he seems to be allergic to every fruit i give him juices, baby food, everything causes him to have a rash, very depressing! :(

Today things are not going great he is still not all that thrilled with food in his mouth he rather have bland things like water and cereal mixed with formula, and no textures. But today he did eat about 5 spoons without gaging without crying and he let me know he was done by not opening his mouth anymore, he also didn't mind getting dirty normally if he touches the food with his hand he will take it out as if he just got burned today he got completely messy and he didn't seem to mind it at all! which is great :)

As for drinking we also found a way around him not knowing how to drink from a bottle or sippy cup or anything. for a while i was spoon feeding him the think water but i felt that was a bit confusing for him. So were told by his therapist to get a honey bear and put some tubing to creat a straw then once he closed his mouth around the straw to squeez a little to give him some liquide. eventualy he will hopefully start sucking on his own but for now i will be helping him and it has worked out great he wont drink much but we are trying! :)

last but not least his wheelchair has worked out great we have gone to the zoo and stores and doctor app. and he really loves his chair! we are thrilled!

PARK

2010-05-20T17:20:00.001-07:00

Today we went to the park, Jesus's vision teacher organized a get together for all the kids she does therapy with and we had a good time :)Jesus is the only one that is still not able to sit on his own and he is also the only one that has other health issues but it was very nice to see that we are not alone in this world regarding blindness. We also got his chair that's what he is sitting in i haven't gotten a picture of just him in it but i will take one and post it soon.

celebrated to soon

2010-05-19T17:42:00.000-07:00

Jesus was off of the oxygen for 3 days then he got sick and needed it agine i feel like i celebrated to soon!:(

on other news we got 2 new bunnies Esmeralda loves to have them! there names are Flor (flower in spanish) and sol (sun in spanish) they are supper cute!:)

Can you guess whats missing?

2010-05-10T14:59:00.000-07:00

Wordless Wednesday

2010-05-05T13:30:00.000-07:00

The Past Month

2010-04-30T21:04:00.000-07:00

In the past month we have been very busy!
Jesus has gotten sick twice since i last blogged still trying to recover from the latest cold. He is not allowed to eat anything by mouth he will have another swallow study June 4, hope he passes it and we are able to start feeding him something by mouth. he will be having another surgery in the next couple of months to remove his tonsils this should help his sleep apnea. He has started on seizure medicine and so far he is handling them good, they seem to be helping.

I tried to post a video of Jesus playing with toys with his feet but it didn't work so here are some pictures.

here is how it works you put a toy close where he can kick and feel it

We are excited to say that Jesus is now rolling to his tummy again! =)

Jesus is also enjoying his Bounce toy he used to be stiff and scared and now he just jumps and jumps! here are before and after pics.

We put up and indoor swing for the kids =) they love it!

On some Esmeralda news, She started preschool, its 2 days a week for 3 hours a day! she is enjoying hanging out with other kids her age!

In between the crazy april and may snow we had a couple of pretty days and esmeralda got to play in her sandbox.

My Hubbys Birthday is May 19 but because he is in the Military we hardly get to celebrate his birthday together well anything together and this year is no exception he will be away for his birthday, so we decided to celebrate early!
(i didnt know what flavor he wanted so i got both) =)

As his gift i took him indoor skydiving!

We got a new addition to our Family her name is LUNA! :)

I want to be stronger!

2010-04-11T19:55:00.000-07:00

This year has been a hard year and just when i think things cant get worse they seem to get worse so now I'm going to stop thinking things cant get worse, I'm going to cry, I'm going to try and talk and then I'm going to keep picking myself up and just hope i have enough strength for the next challenge.

Recently I had a miscarriage I didn't even know i was pregnant and that's what hurt so bad not letting my baby know that i loved it! i wasn't able to talk about this with many because the pain is unexplainable. Now the pain is still there and I'm hoping that writing and talking will help!

today I honestly felt like i was about to lose Jesus, he turned purple was unresponsive and for the first time i dialed 911 without knowing if my son would be alive a second later! i cant explain how much life can change in one second. Thankfully he is doing good, he is alive and happy and i cant thank God more for keeping my son in this earth for letting me have my 2 wonderful kids.

yes this year has been hard with everything from flood, to surgeries, to hospitalization and etc. but we are alive and only God knows why he didn't let us have our 3rd baby, and i will cry i will cry a lot at night when the kids are asleep then when I'm done crying I'm going to pick myself up and pray for strength for whatever comes next!

Birthday Party + Easter

2010-04-05T08:09:00.000-07:00

WARNING: lots of pictures coming up!

we decided to celebrate Jesus's Birthday Party and Easter on the same day because my sister lives a bit far away so in order to have a great day and avoid a lot of driving we did it all in one day.
even though we took a tone of pictures there are some parts of the day that we were not able to capture we did not get pictures of the kids with there baskets and we did not get pictures of the egg hunt (just some video).

yes this did include a lot of candy! This was the snack we served during there egg coloring. (the drink was water, so one healthy thing)

Jesus was taking a nap during the coloring of the eggs.

once Jesus woke up he did get to enjoy some candy.

we started this tradition this year that we get our kids one balloon per year they are so Esmeralda got 3 this year and Jesus got one. he enjoyed playing with it.he would let it go and believe it or not he got from the first picture to the second picture all by himself he would pull it weird to get it to come to him.

We learned that Jesus does not like birthday hats :( but we cant blame him they do tend to pinch at times.

We also got to take pictures of Eric, Jesus, Esmeralda, and Viviana together in there Easter outfits. we could not get them to all smile and look at the same direction but we got good pictures. =)

We also took pictures with our kids once again my kids did not want to look were they had to but well you cant complain with what you get. :)

my sister with her family. (Freddy, Claudia, Eric, Viviana)=)

Jesus with his cake that is bigger than him.;)
(yes that is cake on his feet)

we did give him a taste of cake frosting, he really enjoyed it and tried to bit his dads finger off.:)

Jesus with all his gifts.

nope he did not enjoy opening gifts. we figured out that the reason he did not like it was because he did not like moving on to the next gift he wanted to play with what he just opened and did not like at all that i took them away to open the next gift for him it felt like a tease. that is why next year we will be doing things a bit different for him, we will open one gift let him play with it until he lets us know he is ready to move on to the next gift.

my hubby got me flowers for Easter it was sweet and unexpected:)

just because i hardly put pictures of me and hubby here is one.

today i got my hair cut not a huge difference but i love it! my hair is so thick and they were able to thin it for me. =) (I have to admit i needed some peer pressure to go and do something for myself)

Jesus is still trying to sit all on his own :)

and just because i did warn you all this post had lots of pictures here are two extra ones which i hope you all like:)

HAPPY BIRTHDAY!

2010-04-02T08:48:00.000-07:00

Happy Birthday to Jesus! he is now 1 wow i cant belive he is already 1!
Love you my big boy! TE AMO!

guilty

2010-03-25T19:45:00.000-07:00

i caused Jesus a lot of pain today i feel horribly guilty!

it got stuck, i didnt noticed and i pulled. :(
the ballon part is what was inside him and it came out of the tiny hole.

we are better! :)

2010-03-21T20:01:00.000-07:00

On my last post i was venting which is something that seems to make me feel better. Now i am proud to say that we have had a good couple of days and not letting things set us back. =)

We went to a Easter fair they were having, and had a great time. we managed to deal with the oxygen and the 24/7 feeding we are becoming pros at it. ok pros with mistakes every now and then but still not fumbling all over the place.

Esmeralda has always been scared of the Easter bunny which is why this is the first pictures we have of her with the bunny this is also the reason why she is being hugged by Eric (her cousin) in the picture above, and in this picture she is holding Jesus's foot this helped her be brave.

This weekend we also went to get Jesus his hair cut! yes you did read right we finally went to get his first hair cut.
This is his before picture

and this is his right after picture

before his bath

after his bath: sat for 1 min. YAY!

He is starting to enjoy eating agine.

2010-03-19T21:50:00.000-07:00

I have heard a couple of times that instead of focusing on what your baby cant do you should focus on what they can do. So that is exactly what i try to do.

I am very proud of my boy and everything he is doing like trying to sit, and playing with toys, letting me hold his hands when before he hated his hands to be touched, i love that he is understanding more, he is now weighing at 15.1 lbs, my list can go on and on!

But what do i do now that his list of can does is turning into a list of used to does?

Lately i have found myself thinking of how instead of moving forward we are moving backwards.
Jesus used to roll all around the floor, he used to hold his bottle, he used to lay on his tummy and hold himself up on his elbows, he used to enjoy eating, he used to breath without oxygen, he used to sleep all night, i can go on but i think you all get the point.

I know all of his set backs have to do with his 3 surgery's in the past 2 months and his being sick. but this makes me wonder what if he doesn't stop having surgery's, what if he keeps getting sick? keeps getting weak?

Another thing that seems to keep bothering me is the fact that i cant control anything in my life lately. i wanted to spend Jesus's first valentines, first saint Patrick's day, first Easter and birthday in such a different way than it all seems to be turning out to be. valentines was spent in the hospital after his G-tube was placed, saint Patrick's day was spent trying to get back home and having no energy to do anything and even though we still have some time for his birthday and for Easter well to be honest neither seem to be planed yet, because I'm scared that if i plane ahead something will happen and he will be sick, or in the hospital.

MY BIG BOY!

2010-03-07T13:27:00.000-08:00

My big boy is throwing tantrums, is also eating his cereal really good opening his mouth when he sees the spoon, he is wanting to nap in his own bed instead of on top of me, and now he is also now starting to sit!=)

yes he is still falling over, he cant go for more than maybe 30 seconds at a time!

However for us Him being able to sit on his own without any support is a HUGE accomplishment!

He is a step closer to independent sitting, one step closer to crawling, and one step closer to walking!

I'm running Behind!

2010-03-07T12:25:00.000-08:00

I have been wanting to blog about different things this past week. but at first my computer wouldn't read my memory card, then once i got it to work i just didn't have time to sit down and post them. and now here i am thinking wow i am running behind on this!
hope you enjoy my weeks worth of post in one!

Stare
Whenever we go out people tend to stare at us, well its more like at Jesus. They stare at his g-tube or at his way of stiffing. At times its just his long hair that people stare at. But this past week Esmeralda turned out to be the center of attention.
We went to the doctor like we always do except she was wearing this!

Esmeralda loves to play pretend and on this day she was an elephant. She was playing the game Ring around the Nosy, I didn't feel like making her cry right before i needed her to behave at an appointment so i let her take it! Yes we did get a lot of stares this day but we didn't mind because this was a nice difference!=)

Hair Cut? or no Hair cut?

I have been having a hard time deciding if i should cut Jesus's Hair, and if i do cut it how do i go about choosing a style for him? Esmeralda has not had a hair cut in her 3 years of life, and well Jesus is about to go on his 1st year of life with no hair cut but he is a boy! so what do you think?

Aquarium

We went to the Aquarium on Friday. We drove an hour in the morning to go meet my sister and her Family for a morning of fun. we then had to rush back to get to Jesus's appointment that afternoon. We had so much fun we agreed on doing this more often! Esmeralda had a blast! Jesus on the other hand enjoyed taking the camera from me trying to pull peoples hair and there necklaces (not very interested in the fishes the one that did attract him were the jelly fish! :) here is a pic of the kids!:)

Tantrum

Jesus is not my no tantrum baby anymore! he threw his fist tantrum and it was all because he wanted to stay outside and swing. He was really enjoying his swinging but because it was getting cold and because he is on a 24/7 feed i didn't want to leave him disconnected to long. i took him inside once we were inside he refused to eat his cereal, refused to stay calm until i got a blanket and rocked him that way (kinda like in a hammock style) there was a lot of rocking involved the rest of the day!

Grandparents

My husbands Parents came over from Texas they didn't get to stay long but we really enjoyed there visit!:)

Complicated!

2010-02-25T17:53:00.000-08:00

Today was a hard day for me, i don't think i have felt like crying more than today in a while! I feel like things just keep piling up and up and now I'm crumbling.

*This morning as i was changing Jesus's gauze it looked red and swollen (granulation tissue) i just feel like i could have done something to make him not go threw this, then i started feeling like i wish i could just be his mom and he didn't need surgery, and i could just enjoy his first year of life without thinking of what we can be missing. That lead to me feeling guilty about having those feelings because i am blessed to have him and i should not have those feelings!

*He started having diarrhea today, at first it was just some i didn't think anything of it and as the day progressed he had more and more (in differant diapers) until in the 5th one he was laying on a puddle of diarrhea. i cleaned him up quickly and thought wow i did not see that coming! i thought it was just lose stool, (the thing is Jesus has constipation not diarrhea) how could i have not noticed that he was going threw something, so once again i call the nurse line and after talking to the doctor she says that we are just going to give it a few days but that he may have dumping syndrome! I'm just hoping its nothing serious.

*I have to then go on and listen to someone (not going to say who for privacy reasons) tell me that another mom was really happy that her child did not have the same syndrome as my son. Well my son does have it and i don't want to hear how happy other parents are or are not happy about what my son has!

*I feel i need a break but i don't want to have to need a break i want to just be able to handle everything on my own!

Playing

2010-02-24T07:05:00.000-08:00

Esmeralda enjoys making Jesus laugh, here are some pics for you all to enjoy!:)

he is waiting for her.

Jesus can be very impatient so this is his way of telling her to hurry up =)

such a simple act of attention from her

=)

Binky

2010-02-22T09:01:00.000-08:00

Jesus has never been much of a binky lover. when he was little we bought every kind we found to try and see if we could get him to like one. but none worked he hated every single one we gave him. Recently because of his g-tube we have found him sucking on his blanket. he will sometime cry and cry and we are thinking its that he misses his bottle, so we figured lets see if he will take a binky well nope he still wont he doesn't hate it but he will not suck on it either instead he does this!=)

Any ideas on how to help him get threw not being able to have his bottle?

Not Three Hands

2010-02-20T19:49:00.000-08:00

Today while we sat down for dinner, our daughter kept asking for someone to help her with something in her room. We weren't sure what she wanted and was a little to far away to understand what she was even saying, so my husband got up to go see what she needed.

Jesus: What's up?
Esmeralda: I need help.
Jesus: With what?
Esmeralda: Can you get my pony's tails? (in reference to my little ponies)
Jesus: You get it
Esmeralda: I can't, i have my stuff in this hand (shows her left hand with accessories)
Jesus: What about your other hand?
Esmeralda: I'm moving things, does it look like i have three hands?? NOO! Then help me.
Jesus then proceeds to help her.

It amazes me how much she has grown, and how even at 3 years old she has come up with her own way of thinking!

Emily's Smile Boxes

2010-02-19T15:21:00.000-08:00

http://www.emilyssmileboxes.com/

Today we recived 2 boxes that brought smiles to my kids faces and tears of joy to mine! Thank you Emily!=)

SMILING EVEN BEFORE SHE OPENED IT!:)

First Feeding

2010-02-17T20:09:00.000-08:00

Jesus had his G-tube and nissen wrap done on Friday, during the stay at the hospital Jesus was really grumpy and tiered but i don't blame him, I also got to learn how to use the pump and how to feed him, and by the time we left i was doing everything on my own.

We finally got to come home today. During our 3 hour drive Jesus was the happiest i have seen him in 5 days he was actually cooing a lot something i have never heard him do it was so adorable i wish i would have had my video camera with me.

Once we got home it was time for him to eat, So i very confidently hooked him up and started his pump, and put him on his bouncer so i could go clean up and he wouldn't get all tangled. I was thinking yay I'm doing good,i can really do this, until
my husband says "its not even feeding him"
me: "what do you mean its not feeding him did i not start it?"
Him: "yes you did but its not hooked in his stomach"

That's when i understood he was all wet! how could it have unhooked I'm sure i put it on right. well i choose to believe that it was his wiggling that caused it to come undone He was just so happy to be home he kept kicking and moving to try and get his his toys. that's how it happened.

with that in my mind i went to try again i put more milk in the bag and made sure it was on right and tried for my second try everything seemed to be flowing good, well not really because about half way threw the feeding the pump started saying no food i thought no food really i put enough, yes i had put enough but the top wasn't closed right and half of it had spilled in the backpack. this time i chose to believe that it was my husbands fault he was the one that closed it after all.

The good thing is that the pump keeps track of how much it has feed Jesus so i didn't over feed him, so once again i put more milk made sure it was all set up right i even put it on the iv pole and said OK lets try one more time, but the pump kept telling me no flow out, so i tried all my steps and it would not work (very frustrating) what i forgot to do was unclamp the main tubing. this time i couldn't deny it, it was me!

How i was doing it all at the hospital, and my first feed at home i mess it all up I'm not sure But i am happy to say that he is eating right now and so far so good!:)

Another milestone

2010-02-10T18:46:00.000-08:00

Jesus has gone threw lots of testing and surgery and just things that i thought would stop him from growing and doing new things. but he just amazes me more each day!

he was able to go from just nibbling his bottle to drinking while holding it when he wanted to drink!

He is also rolling all over the floor to get to toys that he wants its so amazing to see him do so much!

thinking positive

2010-02-07T18:37:00.000-08:00

As you all know this year has been tough on our family. I don't feel like i could have gone threw any of it without every ones support, and prayers. My house is still a mess (because i haven't been home to clean it), Jesus still needs to have surgery done(feb.12)he will get the G-tube, and the Nissen wrap. The MRI was postponed because we don't want him going threw so much anaesthesia in such a short period of time. He will also be having a Second sleep study in about 6 weeks.
However we are feeling less stressed, Jesus does have a bed to sleep in, and toys to enjoy i will try posting pics of his room as soon as things aren't so busy. I have my sister to take care of my daughter when i need to be at the hospital with Jesus. I have also gotten to talk by phone and by email to amazing moms who have gone threw the same surgery and have given me so much support and information that i feel like i can do this. It will be hard but i can do it because i have all of you to help me! THANK YOU!:)

Update on Jesus

2010-02-01T20:31:00.000-08:00

Hi, this is Brandi (Nathan's mom) and I'm updating on Jesus for Angelica.

On January 8th, Jesus had surgery to fix a couple of hernias, a chordee, and an orchiopexi was successfully performed. He did well through the surgery but had a hard time coming out of the anesthesia and breathing on his own. He ended up being admitted for a couple of days.

Jesus has spent the majority of the last week in the hospital undergoing several tests and to follow up on his apnea.

One of the first tests last week was an attempt to place a ph probe down his nose into his esophagus to determine the rate and severity of Jesus' reflux. Unfortunately the nurses were unable to get the probe through his sinuses and caused him to bleed and turn purple. Needless to say, it was a lot of discomfort, but no results.

The next day he had a CAT scan that revealed some scarring in his lungs as well as the beginning stages of lung disease.

Following that test, he had an edoscopy to find out what was blocking his airway and causing his apnea. His tonsils were normal size but his adenoids were blocking 50% of his airway. An emergency adenectomy was done that day.

Today, Jesus had a swallow study that revealed he is aspirating. The doctors have recommended that a g-tube be placed in order to protect his lungs. Tomorrow they will attempt another ph probe to determine if his reflux is bad enough to have a Nissen wrap placed at the same time as the g-tube.

On Wednesday he will undergo an upper GI to rule out malrotation of the intestines.

There has been no surgery date set due to the remainder of tests that need to be done.

He is also scheduled for an MRI on Feb. 8th to check for a tethered cord.

This little guy and his family have been through so much in the past month. They are holding up amazingly well and are thankful to everyone who has helped out. In fact, Jesus got to come home and sleep in his newly furnished and decorated room. Angelica said that he loves it and so do they. This beautiful family could really use your continuous thoughts, prayers, and well wishes as there is much more ahead of them.

THANK YOU!

2010-01-23T06:56:00.000-08:00

I just want to state my gratitude to all who have helped us through our troubled times. Everything from thoughts and prayers to contributions are all appreciated. I want to just thank everyone for their efforts in helping us out in our worst time of need. We never thought that we would be able to bounce back from this as soon as we did but with all of your help and support and from the Special Friends Foundation we are able to push forward with our lives. I didn't understand what it meant to be in a family of people who are dealing with the same issues as you are and not just blood related, and now seeing the compassion and commitment that is shown in this RTS family, we are grateful for finding out second family. I cannot express how much we are thankful, but we would just like to thank everyone who did anything to help us in anyway. I won't be naming anyone specifically because I wouldn't want to forget anyone, so just to be on the safe side, thank you to all our wonderful RTS family and to our blood family!

update

2010-01-19T06:59:00.001-08:00

In this Pic. you can see threw to Jesus's bed room. the only thing he has left is a couple of toys.

this was our hallway after the flood.

We are slowly trying to get our house back together! Jesus is slowly getting better from his surgery, he has lost a lot of weight.

If anyone has any used baby boy bedroom things that they no longer need or want we can sure use anything and everything. :)

A NOT so happy New Year

2009-12-31T13:54:00.000-08:00

Our new year has not started out so good, we will be cutting our vacation short because we need to get back home to a flooded house. It turns out that a pipe froze and it burst, once the ice defrosted all the water came out. From what the housing guy told me every room except the kitchen has damage of some sort, the damage was worse in Jesus's room, the hall way, and a bathroom in those 3 room the ceiling caved in. I thought that this new year was already going to be busy and full of new things to come like Jesus was going to have his surgery, his week study, some money problems but now on top of that we will be having to stay in a hotel for 2-4weeks, we will probably have to pay for damages and fixtures of the house, we will have to pay for our personal loss like furniture, electronics, toys, etc.
I keep reminding myself that things happen for a reason that maybe GOD has a bigger plan at the end of all this that i just don't see. That maybe this will be the hardest thing we will have to deal with this year. I just have to keep my faith strong. I was told that GOD doesn't send you anything that he doesn't know you can handle well I'm not sure that he knows me or that he is seeing that I'm not handling it very well that this has made everything seem harder to handle.
I was thinking of fundraising for the Conference this year for July and that if we saved and limited ourselves in somethings we would be able to go but it seems like maybe that wont happen.
This new year has turned out to start off not so good for us!
but i have to stay strong because i have two wonderful kids who need me and i still have Jesus's surgery to worry about and i just need to hopefully see the bigger picture and as long as we are all alive we will keep going!

i just need to win the lottery!
=(

Christmas2009

2009-12-30T16:31:00.000-08:00

HAPPY

2009-12-17T21:09:00.000-08:00

Jesus can officially flip from his tummy to his back and back again we have been waiting for him to be able to do this. there were times when we thought he would never do it because his arms were just way to stiff to let him do anything but he has proven us wrong and I'm so happy that he has! i wish i would have had my camera with me when he did it to capture the moment. Such a great gift he gave us!

Wordless Wednesday

2009-12-16T15:51:00.000-08:00

Panting

2009-12-14T21:26:00.000-08:00

The fun part was making the mess not cleaning it!:)

Jesus Medical LIfe

2009-12-10T19:15:00.000-08:00

So today we went to the Neurologist and it turns out that his most recent EEG came back with one abnormality it only lasted 30sec. and it was only one spike but this is enough for him to be diagnosed with having seizures. I'm not sure how i feel about this it makes me feel like a good mom because i was able to recognize a seizure when i saw one but it makes me feel sad that i was right. i was hoping that my eyes were playing tricks on me but they are not.
This got me to thinking of all the unknown things he will be diagnosed with in the future. He sees A Developmental peds, a Geneticist, an Immunologist, Opthomologist, ENT, Cardiologist, Pulmonologist, GI, Urologist, Orthopedic. What else will they find. I'm glad that they find this things but why does he have to have so many things going on.
Then his cough is back, It seems to go away for a while to make me think that what we are doing is right but it just comes right back like it was never gone. It is so frustrating to see him get better with a new thing then go right back after a couple of weeks of taking it. its as if his body got used to it. I guess i just need answers even if they are hard to hear (like today with the seizures) i need to know whats going on, i need someone who will find what is wrong with him.

2009-12-10T18:50:00.001-08:00

Send your own ElfYourself eCards

Sleep study

2009-12-04T10:11:00.000-08:00

Jesus is normally a good sleeper once he is out for the night he will not cry until morning he will wake up at night to gasp for air but then puts himself to sleep.
well last night was not like that any little noise would wake him up, he did not put himself to sleep because he normally rubs his hair and he couldn't do that so there i had to keep picking him up. The second half of the night went better because i gave him a bottle. poor little guy was not comfortable with everything hooked up to him but i don't blame him.

In the morning once they took off everything he went back to his happy self! except he will not let me touch his head or face I'm hoping that stops soon! His hair was all wild and crazy!

YAY

2009-12-04T09:50:00.000-08:00

A little bit of something

2009-12-02T19:06:00.000-08:00

Ok so i have several things in mind. One is that i have been told by some of you that you are not able to post a comment on my blog and i am not sure why or how to fix the problem so if anyone has any tips, advice, or a fix i would love to hear it please help with this. you can email me to ajmedrano187@yahoo.com

Jesus has his sleep study tomorrow night! we are excited, and anxious about this because well we want to know the results and because we are so happy it was able to get done before the Christmas and before his surgery. It is snowing a lot so i hope the the snow does not stop me from driving the one hour it takes to get there! I'm thinking if i leave 3 hours early i can sure drive slowly and make it on time.

Esmeralda told me today she wanted a toy and when i told her she had to tell Santa Claus she told me we had to go and buy a costume of Santa so that me or her dad could wear it and bring her toys. we have not once done this so i have no idea were she came up with this. maybe I'm not making it believable enough! I'm not sure what else i can do to help her believe!

Get to know him

2009-11-24T05:34:00.000-08:00

I didn't start this blog until recently and i realized that none of you got to see Jesus as he grew up so here are some of the older pictures.

He is finally coming home with us after 12 days in the hospital! Exactly on Easter day. :)

First time meeting his sister!

His first bath at home it might not seem like he is enjoying it but he always crys when i take him out of the water.

One of his first times opening his eyes and at first it didnt seem to happen often.

Got sick with chicken pox at 2 months this is when he is already getting better.

This one we were in a very noisy indoor swiming pool and this is when we learned that loud waterfall noises or vacume type noises make him happy!

He started eating his hands and it was a very happy day for us and now he still loves putting them in even if he is eating so it kinda makes it hard for us. but we still love it:)

I just love his wild hair! but sometimes it gets in his eyes and i feel like cuting it.

He loves swinging! he smiles everytime the wind hits his face the faster you push the more he smiles he is such a dare devil!:)

He was a ducky for Halloween!

Tired

2009-11-23T06:36:00.000-08:00

I hate the feeling of being overweight i used to have control of my health of my appearance but now I'm just so busy with the kids with Jesus's doctor appointments with being tired i haven't figured out a way to fit exercise in and when i do something comes up like Jesus gets sick or Esmeralda wakes up at night and I just feel like I'm making up excuses for why i wont but its more like reasons. i just want to find a way to be able to do it all.
Does anyone have this problem? if yes how did you fix it? what can i do?

First Surgery

2009-11-20T06:52:00.000-08:00

I knew it was coming, I know it has to get done. But actually setting a date, preparing for it, having the doctor tell me everything he is going to do to my little guy made me cry (once i was home not at the doctors office). I thought i was stronger, i hoped that i was ready for everything. So now I'm scared His surgery is Jan.8'2010 And i keep thinking about everything i have to make sure i write down for the Anesthesiologist trying to think if i have everything ready for his recovery, Maybe I'm missing something. His surgery will consist of fixing his undescended testicles, circumcision, and chordee repair. surgery is going to last about 1 1/2 hours, it should be in and out same day unless complications happen. Its just a little overwhelming.

She is 3 Now!

2009-11-19T06:11:00.000-08:00

Yet Another

2009-11-12T15:07:00.000-08:00

Today we had yet another doctor app. we had his ENT this is one of the ones we have been looking forward to going to because of all his breathing issues. He was given some reflux medicine (Lansoprazole) which was extremely hard to find i finally found a pharmacy who had it and would compound it for us. We are praying that this is the answer to his coughing. She also agreed we should get the sleep study there at the Children's hospital, so now we wait for them to call us and give us an app. She also mentioned he has fluid in his ears but that she is going to give it time before doing anything about it because she believes it to be the results of ear infections he had 2 months ago. and that when he goes under anaesthesia for a surgery she will order a hearing study. Basically that is a short summery of our long appointment.

Today i found out that Jesus's favorite TV show is Mikey Mouse Club House he will actually stop crying when he hears it, very adorable! :)

About Jesus

2009-11-10T22:22:00.000-08:00

Jesus was born April 2' 2009. My pregnancy went great. The first thing we noticed about him was that he was not crying he was only grunting. That was a horrible thing to hear when your expecting to hear your baby cry for the first time and then to see him all purple was even worse. We didn't know that this was only the beginning of it all. With a couple more test and a good look at him they noticed that his thumbs and first toes were broad, He has 6 toes in each foot, He is completly blind in the Left eye, he has a heart defect (Bicuspid Aortic Valve), and undescended testicles, along with a chordee. After spending 12 days in the NICU he was discharged with a list of Specialist we had to see. Little did we know this list would later grow. It wasn't until we saw a Geneticist around when he was 2 months old that we heard the words Rubinstein-Taybi Syndrome.
He has been hospitalized twice, and see's over 11 specialist. But through all of this he is strong he wakes up everyday with a big smile on his face, and reminds us that life is a blessing and i would not change anything about our life!

OUR FIRST POST

2009-11-10T20:47:00.000-08:00

Welcome to our blog! My name is Angelica i married my husband Jesus July'2004, we have two wonderful children Esmeralda who is turning 3 this Saturday, and Jesus IV who is 7 months old. Jesus was born with a rare Syndrome (Rubinstein-Taybi) I hope that with this blog we can help others understand a bit more about this syndrome as well as letting our friends and family know how we are doing.